Increasing Shared Decision-Making and Education on Emerging Hemophilia Therapies

The King County Medical Society’s hemophilia education initiative—funded by Pfizer and the National Bleeding Disorders Foundation (NBDF)—was developed to empower healthcare professionals and individuals living with hemophilia. By promoting shared decision-making (SDM) and improving access to emerging therapy information, the project aims to strengthen care across disciplines.

This initiative focuses on translating complex therapeutic advancements into practical, accessible tools that support clinicians in real-world settings while helping patients better understand their treatment options.

Survey-Driven Education: Grounded in Real-World Insight

To guide content development, KCMS conducted a baseline survey of healthcare professionals across specialties. These findings directly shaped the tone, format, and delivery of all educational resources.

57%
of respondents reported low familiarity with new therapies
Nearly 50%
lacked confidence initiating shared decision-making conversations
KEY BARRIERS
Time constraints, treatment complexity, and limited patient understanding were identified as major challenges.

Project Completion & Ongoing Impact

This initiative represents the full scope of our planned work. With the release of the video series and downloadable tools, KCMS has delivered on its commitment to support shared decision-making and expand awareness of emerging hemophilia therapies.

These resources are designed to remain useful beyond the life of the project, continuing to inform clinical practice and support patients, families, and care teams navigating an evolving treatment landscape.

Hemophilia Initiative

Overview

Advancing hemophilia care through education and shared decision-making

Led by: King County Medical Society (KCMS)
Supported by: Pfizer and the National Bleeding Disorders Foundation (NBDF)
Objective:
Equip healthcare professionals with knowledge of emerging hemophilia therapies and promote shared decision-making (SDM) in patient care.

Strategy

  • Conducted baseline and follow-up needs assessment surveys
  • Produced 20 short-form educational videos hosted on YouTube and KCMsociety.org
  • Developed a downloadable shared decision-making toolkit for clinical use
  • Distributed newsletters biweekly to more than 7,000 healthcare professionals over four months with project information
  • Ran a social media campaign with three or more focused posts each week
  • Launched a dedicated hemophilia education webpage on KCMsociety.org

Reach & Engagement

  • 7,000+ clinicians reached through repeated newsletter dissemination
  • YouTube videos viewed nearly 500 times
  • More than 500 social media engagements